Vivre avec la Fibrose Kystique
Publicly funded institution · Montreal, Quebec · BN 877158675RR0001 · Organizations Relieving Poverty
Source: T3010 return, FPE 2024-01-31. Split of total expenditures ($291,105) as filed with the CRA.
Vivre avec la Fibrose Kystique is a charitable organization based in Montreal, Quebec, classified by the CRA under organizations relieving poverty. It appears on the charity register the way hospitals, universities, and other publicly funded bodies do — to issue tax receipts — rather than as a donation-driven charity in the usual sense. In its fiscal year ending January 31, 2024, it reported $331K in revenue and $291K in expenditures.
Its funding that year was roughly 25% from donations, 55% from government, 14% from other charities. Government funding is the majority of its budget. In 2024, 8 other registered charities reported granting it a combined $67K.
Compared with 1,890 poverty-relief institutions of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 87% of peers. Its highest-paid position fell in the $40,000–79,999 range. The charity reported 6 permanent full-time positions.
Revenue has grown substantially over its filings on record here, from $158K in 2020 to $331K in 2024. Its filed list of directors and trustees shows 18 names.
In its own words
Fournir de l'information à nos membre (et au intervenants du milieu médical) concernant les aspects psycho-socio-médicaux de la maladie. Promouvoir défendre les droits et intérêts des adultes fibro-kystique du québec. Production d'outils d'informations. Offrir un support psychologique et technique aux adultes fibro-kystiques dans le besoin.
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $331K | $291K | $282K | $12K | — | $69K |
| 2023 | $238K | $313K | $303K | $6,223 | — | $28K |
| 2022 | $271K | $275K | $221K | $1,878 | — | $103K |
| 2021 | $213K | $220K | $168K | $126 | — | $78K |
| 2020 | $158K | $128K | $86K | $4,806 | — | $85K |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Received $67K from 8 charities:
- The Molson Foundation/fondation Molson$36K
- Canadahelps Canadon$16K
- The Foundation of Greater Montreal$10K
- Canadian Online Giving Foundation$4,274
- PayPal Giving Fund Canada$1,240
- United Way East Ontario / Centraide Est de l'Ontario$160
- United Way of Greater Moncton and Southeastern New Brunswick Region Inc.\centraide de la Region du Grand Moncton et du Sud Est du Nouveau-New Brunswick Inc.$95
- Centraide Québec Chaudière-Appalaches et Bas-Saint laurent$20
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
Its ten highest-paid positions, by band:
- $40,000–79,9991 position
- $1–39,9995 positions
- Permanent full-time positions6
- Total compensation, all staff$202K
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2023)
Alexie Babin (administrateur); Charlène Blais (présidente); Johanie Boivin (administrateur); Sarah Dettmers (administrateur); Rémi Frenette (trésorier); Éric Girard (administrateur); Francis Grenon (administrateur); Félix-Antoine Langevin (administrateur); Marie-Ève Major (administrateur); Caroline Miller (administrateur); Gabrielle Phaneuf (administrateur); Yannick Poirier (administrateur); Sophie Vaillancourt (administrateur); Laurence Dufour (administrateur); Raymond Lapointe (administrateur); Miguel Moisan-Poissan (administrateur); Julie Morel (administrateur); Jérémi Martin (administrateur).
As listed on its 2023 return.
Check the source
Every figure on this page is from Vivre avec la Fibrose Kystique’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 877158675RR0001), or read how we compute the receipt.