The Canadian Society for Mucopolysaccharide & Related Diseases inc.
Charitable organization · Uxbridge, Ontario · BN 129030409RR0001 · Core Health Care · website
Source: T3010 return, FPE 2024-03-31. Split of total expenditures ($343,672) as filed with the CRA.
The Canadian Society for Mucopolysaccharide & Related Diseases inc. is a charitable organization based in Uxbridge, Ontario, classified by the CRA under core health care. In its fiscal year ending March 31, 2024, it reported $296K in revenue and $344K in expenditures. Spending exceeded revenue that year — the gap came out of reserves.
Its funding that year was roughly 81% from donations. In 2024, 9 other registered charities reported granting it a combined $12K.
Compared with 1,130 health charities of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 6% of peers. The charity reported 1 permanent full-time position.
Its filed list of directors and trustees shows 10 names.
In its own words
1. We hold patient/parent meetings 2. We publish quarterly newsletters and maintain a website 3. We publish various types of educational materials for patients parents and medical professionals 4. We assist patients/parents in making contact with other affected patients/parents 5. We fund and encourage research into mps and other related diseases 6. We educate the public about mps and other related diseases 7. We provide funding/financial assistance to families affected by mps 8. We provide bereavement support to families dealing with loss
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $296K | $344K | $75K | $15K | — | $62K |
| 2023 | $184K | $204K | $72K | $2,936 | — | $109K |
| 2022 | $384K | $377K | $227K | $24K | — | $129K |
| 2021 | $194K | $216K | $147K | $2,072 | — | $123K |
| 2020 | $269K | $297K | $169K | $29K | — | $145K |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Received $12K from 9 charities:
- The Hospital for Sick Children Foundation$5,000
- The Calgary Foundation$3,792
- PayPal Giving Fund Canada$935
- Canadahelps Canadon$586
- CHIMP: Charitable Impact Foundation (Canada)$500
- BC Government Employees Community Services Fund Trust$405
- Canadian Online Giving Foundation$400
- United Way of Greater Toronto$84
- Canada Donates Inc.$23
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
- Permanent full-time positions1
- Total compensation, all staff$90K
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2024)
Terry Byrne (treasurer); Melissa Bilodeau (chair); Julie Lariviere (secretary); Ruben Krishnamurthy (director at large); Marilyn Marchment (vice-chair); Kimberly Angel (executive director); Alexandra Wyatt (director at large); Angie Lombardo (director at large); Meagan Henry (director); Katrina Hill (director at large).
As listed on its 2024 return.
Check the source
Every figure on this page is from The Canadian Society for Mucopolysaccharide & Related Diseases inc.’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 129030409RR0001), or read how we compute the receipt.