Regroupement québécois des maladies orphelines
Charitable organization · Montreal, Quebec · BN 812655603RR0001 · Core Health Care
Source: T3010 return, FPE 2024-12-31. Split of total expenditures ($444,467) as filed with the CRA.
Regroupement québécois des maladies orphelines is a charitable organization based in Montreal, Quebec, classified by the CRA under core health care. In its fiscal year ending December 31, 2024, it reported $427K in revenue and $444K in expenditures.
Its funding that year was roughly 39% from government. In 2024, 8 other registered charities reported granting it a combined $103K.
Compared with 1,130 health charities of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 3% of peers. Its highest-paid position fell in the $80,000–119,999 range. The charity reported 7 permanent full-time positions.
Revenue has grown substantially over its filings on record here, from $117K in 2020 to $427K in 2024. Its filed list of directors and trustees shows 8 names.
In its own words
Regroupement de personnes oeuvrant dans le domaine des maladies orphelines. L'organisme fait la promotion de la reconnaissance des maladies orphelines et offre du soutien aux personnes atteintes et à leur famille.
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $427K | $444K | $38K | — | — | $186K |
| 2023 | $342K | $327K | $40K | — | — | $203K |
| 2022 | $371K | $294K | $28K | — | — | $187K |
| 2021 | $290K | $227K | $382 | — | — | $110K |
| 2020 | $117K | $107K | $5,720 | — | — | $46K |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Received $103K from 8 charities:
- Centraide Estrie (conseil Régional de Bien-Être de Sherbrooke)$90K
- Canadahelps Canadon$9,702
- Fondation Québec Philanthrope$2,500
- Fondation Québec Philanthrope$2,500
- United Way East Ontario / Centraide Est de l'Ontario$500
- Canadian Online Giving Foundation$144
- PayPal Giving Fund Canada$64
- Fondation Québec Philanthrope-$2,500
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
Its ten highest-paid positions, by band:
- $80,000–119,9991 position
- $40,000–79,9992 positions
- $1–39,9994 positions
- Permanent full-time positions7
- Total compensation, all staff$322K
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2024)
Kevin Bouchard (président); Geneviève Lajuenesse (administrateur); Nadie Rioux (secrétaire); Alexander Galli (administrateur); James Doyle (trésorier); Nancy Tavares (administrateur); Cassandra Poitras (vice-présidente); Annie Perreault (administrateur).
As listed on its 2024 return.
Check the source
Every figure on this page is from Regroupement québécois des maladies orphelines’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 812655603RR0001), or read how we compute the receipt.