Loeys-Dietz Syndrome Foundation Canada/Fondation du Syndrome Loeys-Dietz Canada
Charitable organization · Pointe-Claire, Quebec · BN 808680607RR0001 · Core Health Care
Source: T3010 return, FPE 2024-12-31. Split of total expenditures ($7,644,669) as filed with the CRA.
Loeys-Dietz Syndrome Foundation Canada/Fondation du Syndrome Loeys-Dietz Canada is a charitable organization based in Pointe-Claire, Quebec, classified by the CRA under core health care. In its fiscal year ending December 31, 2024, it reported $8.5M in revenue and $7.6M in expenditures.
Its funding that year was roughly 99% from donations. In 2024, 6 other registered charities reported granting it a combined $130K.
Compared with 453 health charities of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 0% of peers. Its fundraising cost per donated dollar was lower than 83% of that peer group. Its highest-paid position fell in the $120,000–159,999 range. The charity reported 2 permanent full-time positions.
Revenue has declined over its filings on record here, from $15.3M in 2020 to $8.5M in 2024. Its filed list of directors and trustees shows 5 names.
In its own words
The purpose of the foundation is: (a) to carry out research concerning the cause treatment and potential care of loeys-dietz syndrome; (b) to support individuals affected by loeys-dietz syndrome and their families by promoting with regard to loeys-dietz (c) to receive and maintain a fund or funds and to apply from time to time all or part of thereof and the income derived therefrom to qualified donees in accordance with the income tax act (canada)
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $8.5M | $7.6M | $145K | $439K | — | -$21.6M |
| 2023 | $2.5M | $5.8M | $209K | $78K | $12K | -$15.4M |
| 2022 | $2.9M | $5.3M | $266K | $80K | $58K | -$9.8M |
| 2021 | $8.4M | $4.5M | $211K | $2.2M | — | -$4.6M |
| 2020 | $15.3M | $2.5M | $8,415 | $1.4M | $2,500 | -$2.4M |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Received $130K from 6 charities:
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
Its ten highest-paid positions, by band:
- $120,000–159,9991 position
- $40,000–79,9991 position
- Permanent full-time positions2
- Total compensation, all staff$164K
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2024)
Joseph Galli (director); Salvatore Fratino (director); Joly Richard (director); Fournier Nancy (director); Colpron Natalie (director).
As listed on its 2024 return.
Check the source
Every figure on this page is from Loeys-Dietz Syndrome Foundation Canada/Fondation du Syndrome Loeys-Dietz Canada’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 808680607RR0001), or read how we compute the receipt.