Huntington Society of Canada
Charitable organization · Waterloo, Ontario · BN 118965516RR0001 · Core Health Care · website
Source: T3010 return, FPE 2024-03-31. Split of total expenditures ($5,892,803) as filed with the CRA.
Huntington Society of Canada is a charitable organization based in Waterloo, Ontario, classified by the CRA under core health care. In its fiscal year ending March 31, 2024, it reported $5.2M in revenue and $5.9M in expenditures. Spending exceeded revenue that year — the gap came out of reserves.
Its funding that year was roughly 64% from donations, 19% from other charities. In 2024, 36 other registered charities reported granting it a combined $835K.
Compared with 453 health charities of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 38% of peers. Its highest-paid position fell in the $160,000–199,999 range. The charity reported 19 permanent full-time positions.
Its filed list of directors and trustees shows 15 names.
In its own words
Support and services for individuals carers and families impacted by huntington disease (hd). Hsc provides support to improve the quality of life for those affected by hd. Hsc provides educational resources for families carers and medical communities. Hsc invests in hd research and is involved in national advocacy for genetic fairness. Virtual individual and group support sessions.
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $5.2M | $5.9M | $4.3M | $1.1M | $0 | $3.2M |
| 2023 | $3.3M | $3.8M | $2.8M | $585K | $0 | $3.9M |
| 2022 | $3.3M | $2.9M | $2.2M | $470K | — | $4.4M |
| 2021 | $4M | $3.2M | $2.4M | $525K | $0 | $4.1M |
| 2020 | $3.8M | $4.1M | $3.1M | $687K | — | $3.3M |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Received $835K from 36 charities:
- Charitable Gift Funds Canada Foundation$281K
- The Canadian Red Cross Society$140K
- The Halatsis Family Foundation$125K
- Healthpartners Canada$73K
- Canadian Online Giving Foundation$63K
- Frank and Janice Lochan Private Foundation$31K
- The Winnipeg Foundation$23K
- Aqueduct Foundation$22K
- Canadahelps Canadon$16K
- The Windsor Foundation$15K
- Fondation Philantra Philantra Foundation$10K
- The Douglas Utting Foundation$5,000
- The Hospital for Sick Children Foundation$4,987
- PayPal Giving Fund Canada$4,604
- Strategic Charitable Giving Foundation$3,390
- United Way of Greater Toronto$3,286
- Strategic Charitable Giving Foundation$2,310
- ATCO Electric Epic$2,242
- GiftPact Foundation Inc.$1,500
- Kinistino and District Donor's Choice Combined Appeal$1,254
- Fonthill United Church$1,000
- Maunders McNeil Foundation Inc.$1,000
- Hellenic Community of Ottawa$1,000
- United Way of Kingston Frontenac Lennox & Addington$899
- BenefAction Foundation$775
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
Its ten highest-paid positions, by band:
- $160,000–199,9991 position
- $80,000–119,9994 positions
- $40,000–79,9995 positions
- Permanent full-time positions19
- Total compensation, all staff$2.5M
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2024)
Genevieve Belanger (director); Mackey (mack) Erno (director); Ronald (ron) Muller (director); Brynne Dalmao (director); Diane Tullson (director); Andrew Wright (director); Heidi Bredenholler-Prasad (director); Lise Munsie (director); Sookbir Dillon (director); David Morin (director); Malay Matalia (director); Megan Burd (director); Cindy Rainsford (director); Robert (bob) Scriven (director); Etienne Murgues (director).
As listed on its 2024 return.
Check the source
Every figure on this page is from Huntington Society of Canada’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 118965516RR0001), or read how we compute the receipt.