Dystrophic Epidermolysis Bullosa Research Association of Canada (debra Canada)
Charitable organization · Oakville, Ontario · BN 868336751RR0001 · Supportive Health Care · website
Source: T3010 return, FPE 2024-12-31. Split of total expenditures ($755,269) as filed with the CRA.
Dystrophic Epidermolysis Bullosa Research Association of Canada (debra Canada) is a charitable organization based in Oakville, Ontario, classified by the CRA under supportive health care. In its fiscal year ending December 31, 2024, it reported $484K in revenue and $755K in expenditures. Spending exceeded revenue that year — the gap came out of reserves.
Its funding that year was roughly 21% from donations, 56% from other charities. In 2024, 12 other registered charities reported granting it a combined $295K.
Compared with 1,130 health charities of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 67% of peers. Its highest-paid position fell in the $40,000–79,999 range. The charity reported 1 permanent full-time position.
It reported gifts to 2 qualified donees totalling $199K in 2024, the largest being $161K to The Hospital for Sick Children. Revenue has grown substantially over its filings on record here, from $198K in 2020 to $484K in 2024. Its filed list of directors and trustees shows 11 names.
In its own words
Medical assistance fund - to provide financial assistance for extraordinary medical expenses for eb patients professional support program - continuing education in eb for medical professionals information source - dvds for schools to disseminate information on eb sales of awareness bracelets
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $484K | $755K | $478K | $45K | $200K | $626K |
| 2023 | $604K | $443K | $295K | $37K | $54K | $903K |
| 2022 | $477K | $483K | $337K | $50K | $45K | $615K |
| 2021 | $379K | $294K | $147K | $25K | $71K | $576K |
| 2020 | $198K | $235K | $176K | $11K | — | $488K |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Granted $199K to 2 qualified donees:
Received $295K from 12 charities:
- The Freeburne Banting Foundation$274K
- Canadian Online Giving Foundation$5,234
- United Way British Columbia$4,984
- United Way Golden Horseshoe$4,952
- United Way East Ontario / Centraide Est de l'Ontario$2,478
- Canadahelps Canadon$1,861
- United Way of Greater Toronto$763
- Strategic Charitable Giving Foundation$620
- BC Government Employees Community Services Fund Trust$336
- PayPal Giving Fund Canada$146
- United Way of the Alberta Capital Region$45
- United Way / Centraide Windsor-Essex County—
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
Its ten highest-paid positions, by band:
- $40,000–79,9991 position
- Permanent full-time positions1
- Total compensation, all staff$69K
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2024)
Ryan Hultman (vice-president); Tina Boileau (president); Jay Wilson (chair); Patricia Coutts (vice president); Irene Lara-Corrales (director); Dave Molinaro (vice chair); Micheline Boileau-Bougon (director); Carmen Liy-Wong (director); Janelle Kujawa (director); Tomas Molinaro (treasurer); Erica Molinaro (secretary).
As listed on its 2024 return.
Check the source
Every figure on this page is from Dystrophic Epidermolysis Bullosa Research Association of Canada (debra Canada)’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 868336751RR0001), or read how we compute the receipt.