Cystic Fibrosis Canada / Fibrose Kystique Canada
Charitable organization · Toronto, Ontario · BN 106845100RR0001 · Core Health Care · website
Source: T3010 return, FPE 2024-01-31. Split of total expenditures ($13,700,000) as filed with the CRA.
Cystic Fibrosis Canada / Fibrose Kystique Canada is a charitable organization based in Toronto, Ontario, classified by the CRA under core health care. In its fiscal year ending January 31, 2024, it reported $13.9M in revenue and $13.7M in expenditures.
Its funding that year was roughly 52% from donations. In 2024, 135 other registered charities reported granting it a combined $1.3M.
Compared with 85 health charities of similar size, its share of spending on mission — charitable programs plus grants to other charities — ranked above 8% of peers. Its fundraising cost per donated dollar was higher than 76% of that peer group. Its highest-paid position fell in the $200,000–249,999 range. The charity reported 52 permanent full-time positions.
It reported gifts to 34 qualified donees totalling $398K in 2024, the largest being $53K to UHN Foundation. Its filed list of directors and trustees shows 14 names.
In its own words
Cystic. Fibrosis canada is a national charitable organization that boldly acts for all canadians living with cystic fibrosis so they can live longer healthier fuller lives. With a record of success the organization works to improve access to treatments invests in needed research to advance knowledge about cystic fibrosis pushes for changes to health and financial systems to support people with cf and ensures there is needed care and supports available. Cystic fibrosis canada works in partnership with the cf community including people with lived experience their families clinicians and…
Ongoing-program description from its T3010 filing, verbatim.
The ledger, 2020–2024
| Year | Revenue | Spending | Programs | Fundraising | Gifts out | Net assets |
|---|---|---|---|---|---|---|
| 2024 | $13.9M | $13.7M | $6.5M | $4.6M | $398K | $13.6M |
| 2023 | $13.7M | $13.1M | $6.6M | $4.6M | $311K | $13.5M |
| 2022 | $12.8M | $11.5M | $5.8M | $4M | $333K | $12.8M |
| 2021 | $13M | $9.9M | $4.7M | $3.7M | — | $11.5M |
| 2020 | $17M | $18.5M | $9.4M | $5.7M | $1.4M | $8.4M |
Revenue printed in red where the year ran a deficit. Fiscal years by period end.
Money between charities, 2024
Granted $398K to 34 qualified donees — largest 25 shown:
- UHN Foundation$53K
- Unity Health Toronto$25K
- Hamilton Health Sciences Corporation$19K
- Centre Hospitalier de l'Universite de Montreal$18K
- Providence Health CARE Society$18K
- Alberta Health Services$17K
- London Health Sciences Centre$16K
- The Hospital for Sick Children$13K
- The Governors of The University of Calgary$13K
- Institut Universitaire de Cardiologie$12K
- The Governors of the University of Alberta$12K
- Ottawa Hospital Research Institute/Institut de recherche de l'hopital d'Ottawa$12K
- Nova Scotia Health Authority (nsha)$12K
- Centre Hospitalier Universitaire Sainte-Justine$11K
- BC Children's Hospital$11K
- University of Saskatchewan$9,875
- Vancouver Island Health Authority$9,325
- L'Institut de Recherche du Centre Universitaire de Santé McGill The Research Institute of the McGill University Health Centre$9,000
- Cisss$8,925
- Eastern Regional Integrated Health Authority$8,875
- Centre Intégré Universitaire de Santé et de Services Sociaux du Saguenay-Lac-Saint-Jean$8,375
- Centre Hospitalier Universitaire de Sherbrooke$8,250
- Childrens Hospital of Eastern Ontario - Ottawa Children's Treatment Centre$8,250
- Chu de Quebec - Universite Laval$8,200
- Dalhousie University$7,875
Received $1.3M from 135 charities:
- Canadian Online Giving Foundation$144K
- Edmonton Oilers Community Foundation$140K
- Arrell Family Foundation$100K
- Healthpartners Canada$93K
- Healthpartners Canada$69K
- Canadahelps Canadon$62K
- Canadahelps Canadon$62K
- GiftPact Foundation Inc.$57K
- The John & Ellie Voortman Charitable Foundation$50K
- Federated Health Charities Corporation$48K
- Bayshore Foundation for Empowered Living$35K
- Finding Hope Foundation$35K
- The Charles H. Ivey Foundation$30K
- The Jack Davis Hope Foundation$30K
- Fondation Mirella & Lino Saputo$27K
- BenefAction Foundation$23K
- The Community Foundation of Nova Scotia Society$20K
- Aqueduct Foundation$19K
- The Calgary Foundation$17K
- Oasis Foundation$15K
- PayPal Giving Fund Canada$14K
- Gordon Butler Bequest$14K
- Strategic Charitable Giving Foundation$12K
- United Way of Greater Toronto$11K
- Burgundy Legacy Foundation$10K
As reported on the donors’ own T3010 qualified-donee schedules.
What it pays
Its ten highest-paid positions, by band:
- $200,000–249,9991 position
- $160,000–199,9994 positions
- $120,000–159,9994 positions
- $80,000–119,9991 position
- Permanent full-time positions52
- Total compensation, all staff$6M
Schedule 3 of its 2024 return. The CRA discloses bands, not names or exact salaries.
Directors & trustees (2024)
Stephen McCourt (director); Barbara M. Hill (board chair); Kathryn Deuchars (director); Françoys Levert (director); Robert Sankey (director); Robert Deane (vice-chair); Vincent Hamel (chair finance audit & invest); Marie-Pier Emery (director); Stephanie Nerlich (director); Chelsea Jalioh (director); John Bennett (director); Aleka Maclellan (director); Timothy Trussell (director); Karen Corraini (director).
As listed on its 2024 return.
Check the source
Every figure on this page is from Cystic Fibrosis Canada / Fibrose Kystique Canada’s own T3010 filings, published by the Canada Revenue Agency. Verify against the CRA’s charities listing (search BN 106845100RR0001), or read how we compute the receipt.